Patient data (de-identified) to be entered into the registry includes:

  • Demographic
  • Fracture
  • Fracture history
  • Risk factors
  • Medication use (history)
  • Medication use (duration)
  • Treatment/counseling
  • Pharmacologic treatment
  • Bone mineral density testing
  • Written communication and discharge
  • Follow up survey
Technical Components

Own the Bone uses a web-based registry. As such, users only need to have access to an Internet connection and a current browser (Chrome, Firefox, etc.).  There is no software to buy or install to access the registry. The AOA has contracted with nPhase, Inc. to launch a second generation version of the patient registry.  The nPhase, Inc. registry system is called REDCap Cloud.   Currently, the registry cannot be customized for individual sites. However, a site can opt not to collect certain data fields if desired as an alternative.

What Happens to Your Data?

Once your de-identified patient data is entered into the registry, REDCap Cloud stores the information on their encrypted and secure database.

System and Benchmarking Reports

The key tool of the Own the Bone Program is the patient registry. The registry allows Own the Bone hospitals and medical centers to benchmark their improvements in patient care internally as well as externally against other participating institutions nationwide.

The registry system allows sites to generate the following reports:

Subject Listing Report

Listing summarizing all patients’ demographic data (e.g. gender, race, previous fracture history) with automatically-generated charts illustrating % of patients by category.

Total Number of Subjects Report

Total number of patients currently entered into the registry by a site. Sites can also access a report indicating how many fragility fracture patients have been entered in a specific time period.

Follow-up Report

Listing of all patients with date of fracture and date of follow up.

Percent Follow-up Report

Total number of patients entered, total number patient follow ups, and percentage of patients entered by a site that have complete follow up data.

Follow Up Due Report

Listing of patients at a site who are pending follow up, with date of fracture, and number of days since fracture.

Follow Up Dates Report

Listing of all patients entered with date of fracture and date of follow up if available.

Site of Fracture Report

Listing of all patients entered with fracture date and fracture site.

Letter to Patient Report

Count and percent of patients who were given or sent a letter at site or sites, dependent upon user’s permissions.

Letter to Physician

Count and percent of patients whose physician(s) was sent a letter at site or sites, dependent upon user’s permissions.

Follow-up Report – Cal, Vit D and Rx

Report shows patients with completed follow-up and if they’re taking calcium, vitamin D and/or prescription osteoporosis medication.

Sites can run benchmarking reports showing a site’s success against the aggregate results of other Own the Bone programs. The following reports are available showing compliance by measure for both individual sites and an aggregate of sites

Calcium

Percent of eligible patients who receive counseling on calcium intake

Vitamin D

Percent of eligible patients who receive counseling on vitamin D intake

Exercise

Percent of eligible patients who receive counseling on regular weight bearing and muscle strengthening exercises

Fall Prevention

Percent of eligible patients who receive counseling on prevention of falls

Smoking

Percent of eligible patients who were counseled to avoid smoking

Alcohol Consumption

Percent of eligible patients who were counseled to consume an average of no more than two drinks per day

BMD/DXA Testing (Recommended)

Percent of eligible patients who were recommended to have a BMD/DXA scan

BMD/DXA Testing

Percent of eligible patients who have BMD/DXA scanning performed or scheduled within 3 months of fracture

Pharmacotherapy (Recommended)

Percent of eligible patients who received counseling recommending evidence-based pharmacotherapy for the treatment of osteoporosis or low bone density

Pharmacotherapy (Treatment Initiated)

Percent of eligible patients who receive evidence-based pharmacotherapy for the treatment of osteoporosis